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Closed AM - PMMyotonic Dystrophy Support Group+44 115 987 0080The Myotonic Dystrophy Support Group is a Patients Support Association based in Nottingham, England. The organization provides support and resources for individuals and families affected by myotonic dystrophy, a genetic disorder that affects muscle function. As one of the leading Associations in the UK, the Myotonic Dystrophy Support Group is dedicated to improving the lives of those impacted by this condition through advocacy, education, and community building.See more
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Definition of Patients Support Associations
Patients Support Associations are non-profit organizations that are dedicated to providing assistance and support to patients who are suffering from a specific medical condition or disease. These associations may be run by volunteers, healthcare professionals or the patients themselves. The main aim of these associations is to provide emotional and social support to the patients, educate them and their families about the disease, and raise awareness about the condition in the community.
Types of Patients Support Associations
There are various types of Patients Support Associations in the UK catering to different diseases and medical conditions. Some associations are specific to a particular medical condition such as Cancer Research UK, while others may cater to a broader category such as Rare Diseases UK. There are also Patient Support Associations for specific age groups such as the Children's Liver Disease Foundation, and gender-based associations such as the Breast Cancer Care association.
Purpose and Benefits of Patients Support Associations
Patients Support Associations play a vital role in the healthcare sector by providing a range of benefits to the patients and their families. These associations offer emotional and social support to the patients, provide education and resources about the medical condition, and create awareness about the disease in the community. Patients who join these associations can connect with other patients who are going through the same experience, share their stories, and find comfort and understanding. Patients Support Associations also provide a platform for patients to voice their opinions, concerns, and experiences related to their medical condition.
Services Offered by Patients Support Associations
Patients Support Associations offer various services to their members such as counseling, peer-to-peer support groups, financial assistance, educational resources, and social events. These associations also organize awareness campaigns, fundraising events, and research projects related to the medical condition. Patients Support Associations may also collaborate with healthcare professionals and hospitals to provide specialized care to the patients.
Membership and Participation in Patients Support Associations
Patients and their families can join Patients Support Associations by filling out an application form and paying a membership fee. Some associations may offer free membership to the patients. Members can participate in support groups, attend events and educational programs, and connect with other members of the association. Patients can also volunteer their time and resources to support the work of the association. Patients Support Associations also accept donations from individuals and organizations to fund their activities.
Funding and Support of Patients Support Associations
Patients Support Associations in the UK are primarily funded through donations, grants from businesses and corporations, and government funding. These associations may also receive funding from healthcare organizations and hospitals. Patients Support Associations also rely heavily on volunteers who help in organizing events, raising awareness, and providing support to the patients.
Impact of Patients Support Associations on Healthcare
Patients Support Associations have a significant impact on healthcare by providing emotional and social support to the patients, educating the community about the medical condition, and raising funds for research and treatment. These associations play a vital role in advocating for the rights of the patients and improving their access to healthcare services. Patients Support Associations also provide a platform for patients to share their experiences and contribute to the development of new treatments and therapies.
How to Find and Connect with Patients Support Associations
Patient Support Associations can be found by searching online or through healthcare professionals, hospitals and clinics. Patients and their families can also connect with these associations by attending events, fundraisers, and support group meetings. Patients can also reach out to these associations through their websites or social media pages. By joining these associations, patients can find a community of support and connect with other patients who are going through similar experiences.
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