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Patients Support Associations

Myotonic Dystrophy Support Group

The Myotonic Dystrophy Support Group is a Patients Support Association based in Nottingham, England. The organization provides support and resources for individuals and families affected by myotonic dystrophy, a genetic disorder that affects muscle function. As one of the leading Associations in the UK, the Myotonic Dystrophy Support Group is dedicated to improving the lives of those impacted by this condition through advocacy, education, and community building.

Introduction to Myotonic Dystrophy Support Group

Myotonic Dystrophy Support Group is an association dedicated to providing support to patients suffering from myotonic dystrophy. Founded in 1989, the company has been actively working to raise awareness and provide information about the disease. What makes this company unique is their focus on a specific disease and their commitment to helping patients and their families.

Services & products

The Myotonic Dystrophy Support Group offers a variety of services to patients and their families. They provide information related to the disease, including medical research updates, support groups, and access to specialists. They also offer a range of products such as books, CDs, and DVDs related to the disease.

Location

The Myotonic Dystrophy Support Group is located in Gedling, Nottingham, England. The area is a mix of residential and commercial properties, with a variety of businesses nearby. Visitors can expect to experience a friendly and welcoming atmosphere. The closest public transportation options are Carlton Train Station (1.6 miles), Netherfield Train Station (2 miles), and Nottingham Train Station (3.2 miles).

Benefits

Customers can choose Myotonic Dystrophy Support Group over others in the same industry because of their specialized focus on myotonic dystrophy. They have years of experience in the field and are dedicated to helping patients and their families. They offer a wide range of services and products, making it a one-stop-shop for information related to the disease.

Good to know

Customers should be aware that Myotonic Dystrophy Support Group is a non-profit organization and relies on donations to continue providing their services. They are dedicated to privacy and ensuring the confidentiality of their patients.

Reviews

Customers have praised Myotonic Dystrophy Support Group for their comprehensive knowledge of the disease and their dedication to helping patients and their families. Their customer service is exceptional, and patients feel heard and supported. Overall, Myotonic Dystrophy Support Group has received positive reviews from their customers.

Amenities

  • amenity
    counseling
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    support group
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    education
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    advocacy
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    online resources
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    mental health services
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    referrals
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    community outreach

FAQ

What types of support services do you offer to patients?

We offer a variety of support services to patients including emotional support, information resources, and advocacy. Our support groups provide a safe and confidential space for patients to connect with others who understand their experience. We also offer educational resources on Myotonic Dystrophy and assist patients in accessing healthcare services.

How do you ensure confidentiality and privacy of patient information?

We take confidentiality and privacy very seriously. All of our staff and volunteers are required to sign a confidentiality agreement and complete training on safeguarding patient information. We also have strict policies and procedures in place to ensure that patient information is kept secure and confidential at all times.

Are there any fees associated with accessing your services?

No, all of our services are provided free of charge. We are a non-profit organization and rely on donations to fund our programs and services.

Can you provide references or testimonials from past patients?

Yes, we are happy to provide references or testimonials from past patients who have utilized our services. Please contact us for more information.

What is the process for joining and accessing support from your association?

Patients can join our association by filling out a membership form on our website or by contacting us directly. Once they become members, they will have access to all of our support services, including support groups, educational resources, and advocacy. They can also contact us directly for more information and support.