Patients Support Associations

The ITP Support Association

The ITP Support Association is a Patients Support Association based in Bedford, England. They provide support and resources for patients with immune thrombocytopenia (ITP) and their families. The association aims to raise awareness of ITP and promote research into the condition. They are dedicated to improving the lives of those affected by ITP and are a valuable resource for anyone seeking information and support.

Introduction to The ITP Support Association

The ITP Support Association is a UK-based non-profit organization that provides support and information to patients suffering from ITP (Immune thrombocytopenia). The association was founded in 1995 by a group of patients with ITP and medical professionals who recognized the need for a support network. What makes this association unique is that it is run by ITP patients, which means they have firsthand knowledge and experience of the condition.

Services & products

The ITP Support Association offers a wide range of services to patients and their families, including a helpline, a website with information about ITP, and a forum where patients can connect with others. They also provide educational materials for medical professionals and organize events to raise awareness and funds for ITP research.

Location

The ITP Support Association is located in Bolnhurst, a small village in Bedfordshire, England. The area is rural and peaceful, with a few local shops and pubs. The nearest town is Bedford, which is about a 20-minute drive away. There are several public transportation options available, including the X5 bus, which stops near the association's office, as well as the Bedford train station and the Bedford bus station.

Benefits

Customers should choose The ITP Support Association because it is a trusted source of information and support for patients with ITP. The association has been around for over 25 years and has helped thousands of patients and their families. They offer a variety of services that can help patients manage their condition and improve their quality of life.

Good to know

It is important to note that The ITP Support Association is not a medical organization and cannot provide medical advice. Patients should always consult with their healthcare provider before making any changes to their treatment plan.

Reviews

Customers have praised The ITP Support Association for its helpfulness and support. Many patients have found the helpline and forum to be invaluable resources for information and emotional support. Medical professionals have also praised the association for its educational materials and advocacy efforts.

Amenities

support group
education
advocacy
online resources
referrals
community outreach

FAQ

What types of support services do you offer to patients?

We offer a range of support services to patients with Immune Thrombocytopenia (ITP), including online forums, one-to-one support, information resources, and advocacy services. We also organize face-to-face meetings and educational events for patients and their families.

How do you ensure confidentiality and privacy of patient information?

We take the privacy and confidentiality of patient information very seriously. We have strict policies and procedures in place to protect patient data, and we comply with all relevant data protection legislation. We only share patient information with their consent, and we ensure that all staff and volunteers sign confidentiality agreements.

Are there any fees associated with accessing your services?

No, all of our support services are free of charge to ITP patients and their families. We are a non-profit organization and rely on donations and grants to fund our work.

Can you provide references or testimonials from past patients?

Yes, we have many testimonials and references from past patients who have benefitted from our services. These can be found on our website, and we are also happy to provide them on request.

What is the process for joining and accessing support from your association?

Patients can join our association by registering on our website or contacting us directly. Once registered, they will have access to our range of support services, including online forums and one-to-one support. We also send out regular newsletters and updates to keep our members informed about the latest developments in ITP research and treatment.