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Patients Support Associations

The Haemophilia Society

The Haemophilia Society is a patients support association based in London, England. They provide support and advocacy for individuals and families affected by haemophilia and other bleeding disorders. The society also works to raise awareness and educate the public about these conditions. As an association, they strive to create a supportive community for those impacted by haemophilia and related disorders.

Introduction to The Haemophilia Society

The Haemophilia Society is a UK-based patient support association that was founded in 1950. The company was established to support individuals and families affected by haemophilia and other bleeding disorders. What makes this company unique is that it is run by people with bleeding disorders, for people with bleeding disorders, ensuring that the services provided are tailored to meet their specific needs.

Services & products

The Haemophilia Society offers a range of services to support individuals and families affected by bleeding disorders. These include information and advice, advocacy, and practical and emotional support. The company also offers a range of educational resources and training programmes for medical professionals and the wider community. Customers can also purchase a range of products from the company's online shop, such as books, DVDs, and merchandise.

Location

The Haemophilia Society is located in Borough, a vibrant area in Southwark, London. This area is known for its historic architecture, trendy restaurants and cafes, and bustling markets. Visitors can expect to find a mix of businesses in the area, including independent retailers, art galleries, and tech start-ups. The company is conveniently located near several public transportation options, including Borough Underground station, which is just a 2-minute walk away. Other nearby options include London Bridge station (11 minutes' walk) and Southwark station (14 minutes' walk).

Benefits

Customers should choose The Haemophilia Society because it is a patient-led organisation that truly understands the needs of individuals and families affected by bleeding disorders. The company provides a range of services that are tailored to meet the specific needs of its customers, including information and advice, advocacy, and practical and emotional support. The company also offers a range of educational resources and training programmes for medical professionals and the wider community.

Good to know

Customers should be aware that The Haemophilia Society is a non-profit organisation, which means that all profits are reinvested back into the company to fund its services and support programmes.

Reviews

Customers have praised The Haemophilia Society for its excellent support services, knowledgeable staff, and friendly and welcoming atmosphere. Many customers have also noted that the company has helped them to better understand their condition and to feel more confident in managing their symptoms.

Amenities

  • amenity
    counseling
  • amenity
    support group
  • amenity
    financial assistance
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    education
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    advocacy
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    online resources
  • amenity
    mental health services
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    medical advice
  • amenity
    referrals
  • amenity
    community outreach
  • amenity
    crisis intervention

FAQ

What types of support services do you offer to patients?

We offer a range of support services to patients, including educational resources, advocacy, and emotional support. We also organize events and activities for patients to connect with others who understand their experiences.

How do you ensure confidentiality and privacy of patient information?

Protecting patient confidentiality and privacy is a top priority for us. We comply with all relevant data protection laws and have strict policies in place to ensure that patient information is only accessed by authorized personnel. We also provide patients with information about their rights and how their information is used.

Are there any fees associated with accessing your services?

No, all of our services are free of charge to patients. We are a non-profit organization that is dedicated to supporting patients with haemophilia and related bleeding disorders.

Can you provide references or testimonials from past patients?

Yes, we have many references and testimonials from past patients who have found our support services to be invaluable. You can find some of these on our website, or we can provide them upon request.

What is the process for joining and accessing support from your association?

Patients can join our association by filling out an application on our website or by contacting us directly. Once they are a member, they can access all of our support services and resources. We also have a helpline that patients can call for immediate support and assistance.

Reviews

  • Ben Zanna

    27-11-2022
  • Nurgul Ozdemir

    27-05-2019
  • Stu Mc

    Most disgusting attempt to sabotage the upcoming public inquiry, the H/S are a implicated party so do not believe what they are posting about campaign groups beening divided, the campaign groups are united and strong and i advise all membersto not send the H/S evidence instead please heed advice from your legal teams

    27-05-2018
  • John Carter

    27-05-2017