Associations Or Organizations
Rett UK
Rett UK is a non-profit organization based in the United Kingdom. They are dedicated to improving the lives of individuals and families affected by Rett Syndrome, a rare neurological disorder. Rett UK provides support, information, and advocacy for those living with the condition, as well as funding research into potential treatments and a cure. As an association focused on Rett Syndrome, Rett UK is committed to raising awareness and promoting understanding of this complex disorder.
Introduction to Rett UK
Rett UK is an organization that was founded in 1985. They are dedicated to improving the lives of people affected by Rett syndrome, a rare neurological disorder that affects mainly females. Rett UK provides support and information to families, carers, and professionals. What makes Rett UK unique is their focus on the individual. They understand that every person with Rett syndrome is different, and they tailor their services to meet their specific needs.Services & Products
Rett UK offers a range of services to support people with Rett syndrome and their families. This includes specialist support workers who can provide practical assistance, such as help with feeding and personal care. They also offer information and advice on a range of topics, such as education, benefits, and equipment. Rett UK organizes events and activities for families, which provide an opportunity to meet others in similar situations and share experiences.Location
Rett UK is located in Victory House, Chobham St, Luton, England. The area is primarily a commercial district, with a variety of businesses and offices. There are several cafes and restaurants in the area, providing plenty of options for lunch or a coffee break. The nearest public transportation options are Luton railway station (0.6 miles away), Luton Airport Parkway railway station (1.7 miles away), and Luton bus station (0.5 miles away).Benefits
Rett UK is the only UK charity that focuses solely on Rett syndrome. They have a wealth of knowledge and experience in this area, and are dedicated to providing the best possible support to individuals and families affected by the condition. Their services are tailored to meet the needs of each individual, which means that families can get the support that is right for them.Good to know
It's worth noting that Rett UK is a charity, and relies on donations to fund its work. They are always looking for volunteers and supporters to help them raise funds and awareness.Reviews
Customers have praised Rett UK for the support and information they provide. They have been described as a lifeline for families affected by Rett syndrome, and their events and activities have been praised for providing an opportunity to meet others in similar situations. Overall, customers feel that Rett UK is a valuable resource for anyone affected by Rett syndrome.FAQ
What benefits does your association provide to its members?
We provide a range of benefits to our members, including access to specialist advice and support, information resources, and a community of individuals and families affected by Rett Syndrome. Members also have the opportunity to attend events and conferences, and receive regular updates about the latest research and developments in the field.How do you advocate for the interests of your members?
We work closely with policymakers, healthcare professionals, and other stakeholders to raise awareness of Rett Syndrome and the challenges faced by individuals and families affected by the condition. We also provide training and support to our members to help them advocate for themselves and their loved ones, and collaborate with other organizations to promote the interests of the Rett Syndrome community.What networking opportunities do you offer to members?
We offer a range of networking opportunities to our members, including online forums, social media groups, and local support groups. We also hold regular events and conferences where members can meet and connect with others affected by Rett Syndrome, share their experiences, and learn from experts in the field.Can you provide examples of successful initiatives or projects your organization has undertaken?
Some examples of successful initiatives and projects we have undertaken include fundraising campaigns to support research into Rett Syndrome, advocacy efforts to improve access to healthcare and support services for individuals and families affected by the condition, and the development of resources and training programs to help our members better understand and manage the challenges of Rett Syndrome.How do you ensure transparency and accountability in your operations?
We are committed to transparency and accountability in all our operations. We have a clear governance structure, with a board of trustees and a management team responsible for overseeing our activities. We also have policies and procedures in place to ensure ethical and responsible behavior, and regularly report on our activities and financial performance to our members and stakeholders.Reviews
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Jill Simpson
Rett UK offer incredible support for families affected by Rett Syndrome. We always feel we can reach out to Rett UK when struggling with any particular element of dealing with Rett Syndrome. Their advice and support have been invaluable.
29-10-2022
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Helen Lane
29-09-2022
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Atit Mollah
29-07-2022
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Rochelle bradbury
29-05-2016
