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Patients Support Associations

MLD Support Association UK

MLD Support Association UK is a patients support association based in Whitstable, England. The association is dedicated to providing support and assistance to individuals and families affected by Metachromatic Leukodystrophy (MLD) and related diseases. As one of the leading associations in the UK, MLD Support Association UK works tirelessly to raise awareness about MLD and the challenges faced by those living with the disease. The association also provides a range of services and resources to help patients and their families navigate the complex healthcare system and access the care they need. With a team of dedicated professionals and volunteers, MLD Support Association UK is committed to making a positive difference in the lives of those affected by MLD.

Introduction to MLD Support Association UK

MLD Support Association UK is a non-profit organization that was founded in 1999. The company's primary purpose is to provide support to patients with Metachromatic Leukodystrophy (MLD) and their families. MLD is a rare genetic disorder that affects the nervous system and can be fatal. MLD Support Association UK is unique because it is the only organization in the UK that is dedicated to providing support to MLD patients and their families.

Services & products

MLD Support Association UK offers a variety of services to MLD patients and their families. These services include providing information on MLD, connecting families with other families affected by MLD, and organizing events and activities for MLD patients and their families. The company also offers financial assistance to families who need help with the cost of caring for an MLD patient.

Location

MLD Support Association UK is located on the fifth floor of the Amphenol Business Complex in Whitstable, England. Whitstable is a charming seaside town that is known for its oysters and beautiful coastline. The area is home to a variety of businesses, including restaurants, cafes, and shops. There are several public transportation options near MLD Support Association UK, including the Whitstable train station (0.5 miles), the Whitstable bus station (0.4 miles), and the Harbour Street bus stop (0.1 miles).

Benefits

Customers should choose MLD Support Association UK because the company is dedicated to providing support to MLD patients and their families. The organization has a wealth of knowledge and experience when it comes to MLD, and they are always willing to help families in any way they can. MLD Support Association UK is also unique because it is the only organization in the UK that is solely focused on providing support to MLD patients.

Good to know

Customers should be aware that MLD Support Association UK is a non-profit organization, and all of their services are offered free of charge. The company relies on donations from individuals and organizations to fund their operations.

Reviews

Customers have praised MLD Support Association UK for their compassionate and knowledgeable staff. Families affected by MLD have found the organization to be a valuable resource and a source of comfort during difficult times. Customers appreciate the variety of services that MLD Support Association UK offers, as well as the organization's commitment to providing support to MLD patients and their families.

Amenities

  • amenity
    counseling
  • amenity
    support group
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    financial assistance
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    education
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    advocacy
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    online resources
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    mental health services
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    medical advice
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    referrals
  • amenity
    community outreach
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    crisis intervention

FAQ

What types of support services do you offer to patients?

We offer a range of support services to patients, including emotional support, practical advice, and information on managing MLD. We also organize support groups and events to help patients connect with others going through similar experiences.

How do you ensure confidentiality and privacy of patient information?

We take confidentiality and privacy very seriously and adhere to strict data protection laws. All patient information is kept securely and only shared with relevant healthcare professionals with the patient's consent.

Are there any fees associated with accessing your services?

No, our services are free of charge for patients and their families.

Can you provide references or testimonials from past patients?

Yes, we have many testimonials from past patients who have benefited from our support services. We can provide these upon request.

What is the process for joining and accessing support from your association?

Patients and their families can join our association by filling out a membership form on our website or contacting us directly. Once a member, they can access our support services through our helpline, email, or by attending our events and support groups.