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Patients Support Associations

MDS UK Patient Support Group

MDS UK Patient Support Group is a Patients Support Association based in London, England. They provide support to patients and families affected by Myelodysplastic Syndromes (MDS) and related conditions. The organization is committed to raising awareness and improving the quality of life for those affected by MDS.

Introduction to MDS UK Patient Support Group

MDS UK Patient Support Group is an association aimed at providing support, information, and resources to patients affected by Myelodysplastic Syndromes (MDS) and their families. The group was founded in London in 2008 by several MDS patients who felt there was a need for a dedicated support group for this disease. MDS UK Patient Support Group is unique in that it is run entirely by unpaid volunteers who are either MDS patients or family members of MDS patients.

Services & products

MDS UK Patient Support Group offers a wide range of services to MDS patients and their families. These services include information and advice on MDS, emotional support, support group meetings, patient conferences, and awareness-raising activities. The group also provides educational resources for healthcare professionals and advocates for MDS patients at a national level.

Location

MDS UK Patient Support Group is located at King's College Hospital Haematology, Bessemer Wing, Denmark Hill, London SE5 9RS, United Kingdom. The area surrounding the hospital is primarily residential with several small shops and cafes nearby. The closest public transportation options are Denmark Hill station (0.2 miles), Loughborough Junction station (0.8 miles), and East Dulwich station (1.3 miles).

Benefits

Customers should choose MDS UK Patient Support Group because of the organization's commitment to providing comprehensive support to MDS patients and their families. The group's volunteers are experienced and knowledgeable about the disease and are dedicated to improving the lives of those affected by MDS. MDS UK Patient Support Group is also unique in that it offers a range of services and resources that are not available through other support groups.

Good to know

Customers should be aware that MDS UK Patient Support Group is a non-profit organization that relies on donations to fund its activities. The group is not affiliated with any medical institution or pharmaceutical company and does not endorse any specific treatment or medication for MDS.

Reviews

Customers praise MDS UK Patient Support Group for its compassionate volunteers, informative resources, and comprehensive support services. Many patients and families report feeling less alone and more empowered in managing their disease thanks to the group's efforts. Overall, the reviews are overwhelmingly positive, and the group is highly recommended by those who have used its services.

Amenities

  • amenity
    counseling
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    support group
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    financial assistance
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    education
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    advocacy
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    online resources
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    mental health services
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    medical advice
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    referrals
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    community outreach
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    crisis intervention

FAQ

What types of support services do you offer to patients?

We offer a range of support services to patients, including emotional support, practical advice, and information about treatment options. We also provide support groups and educational resources to help patients better understand their conditions and manage their symptoms.

How do you ensure confidentiality and privacy of patient information?

We take patient confidentiality and privacy very seriously and have strict protocols in place to safeguard all personal information. This includes securely storing all data, only sharing information with authorized individuals, and following all relevant data protection regulations.

Are there any fees associated with accessing your services?

No, all of our support services are completely free of charge for patients. We believe that everyone should have access to the resources and support they need to manage their health conditions.

Can you provide references or testimonials from past patients?

Yes, we have many satisfied patients who have benefited from our support services. We can provide references and testimonials upon request from patients who have given us permission to share their experiences.

What is the process for joining and accessing support from your association?

Patients can join our association by contacting us directly or visiting our website. Once they have joined, they can access our full range of support services, including support groups, educational resources, and one-on-one support from our team of trained volunteers. We also hold regular events and workshops to help patients connect with others and learn more about managing their health conditions.

Reviews

  • Jessica Powell

    29-05-2022

  • Amanda Russell

    MDS UK Support provides valuable information, help and support for it's members. Myelodysplastic Syndrome is a rare blood cancer, so it is important to be able to have a resource that is run by knowledgeable people to turn to.

    29-05-2022

  • Steve Richardson

    29-05-2018