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Charities, Child Psychiatrists, Associations Or Organizations

Fragile X Society

The Fragile X Society is a UK-based organization dedicated to supporting individuals and families affected by Fragile X Syndrome. As a charity, they provide resources and services to help improve the lives of those living with this genetic condition. The Society works closely with child psychiatrists and other healthcare professionals to ensure that individuals with Fragile X Syndrome receive the best possible care. They are committed to raising awareness and advocating for the needs of those affected by this condition. The Fragile X Society is a valuable resource for anyone seeking information or support related to Fragile X Syndrome.

Introduction to Fragile X Society

The Fragile X Society is a UK-based charity that supports individuals and families affected by Fragile X Syndrome, a genetic condition that can cause developmental and learning disabilities. The company was founded in 1990 by a group of parents of children with Fragile X Syndrome, and it is run by a team of dedicated staff and volunteers. The company's unique focus on Fragile X Syndrome sets it apart from other charities in the healthcare and medicine industry.

Services & Products

The Fragile X Society offers a range of services to support individuals and families affected by Fragile X Syndrome. These services include information and advice, family support, advocacy, and training for professionals. The company also produces educational materials and resources for individuals with Fragile X Syndrome and their families, as well as for healthcare professionals and educators.

Location

The Fragile X Society is located in Rood End House, in Great Dunmow, Dunmow, England. The area is known for its rural charm and historic architecture, and visitors can expect to find a range of small businesses and shops in the town center. There are several public transportation options available near the Fragile X Society, including the Dunmow bus station (0.3 miles away), the Braintree train station (7.9 miles away), and the Stansted Airport train station (8.9 miles away).

Benefits

Customers should choose the Fragile X Society because of its unique focus on supporting individuals and families affected by Fragile X Syndrome. The company's staff and volunteers are highly knowledgeable about the condition and are dedicated to providing the best possible support and resources to those who need it. Additionally, the Fragile X Society is a registered charity, which means that all donations made to the company go directly towards supporting its mission.

Good to Know

Customers should be aware that the Fragile X Society is primarily focused on Fragile X Syndrome and may not be able to offer support for other conditions or disabilities. Additionally, while the company does offer a range of services, some services may be limited by funding and resources.

Reviews

Customers have praised the Fragile X Society for its knowledgeable and compassionate staff, as well as its range of helpful resources and services. Many families affected by Fragile X Syndrome have found the company to be a valuable source of support and information. However, some customers have noted that the company's resources and services may be limited by funding constraints.

Amenities

  • amenity
    volunteer program
  • amenity
    donation collection
  • amenity
    fundraising
  • amenity
    community support
  • amenity
    educational program
  • amenity
    financial assistance
  • amenity
    private office
  • amenity
    waiting room
  • amenity
    wheelchair accessible
  • amenity
    on-site parking

FAQ

What specific causes or programs does your charity support?

Our charity specifically supports individuals and families affected by fragile X syndrome, which is a genetic condition that can cause developmental delays, learning disabilities, and other related conditions. We provide resources, education, and support to those impacted by this condition.

How does your charity ensure transparency and accountability in its operations?

We ensure transparency and accountability in our operations by regularly publishing financial reports and updates on our website. We also have a board of directors who oversee our activities and ensure that we are operating in accordance with our mission and values.

What types of services do you offer for children with mental health concerns?

As a charity focused on fragile X syndrome, we primarily offer resources and support for families impacted by this condition. However, we recognize that mental health concerns can be a part of fragile X syndrome and we may provide information and resources for addressing those concerns.

What is the process for diagnosing and treating a child's mental health condition?

As a charity focused on fragile X syndrome, we do not provide medical diagnosis or treatment. We recommend that families consult with their healthcare providers for diagnosis and treatment options for mental health concerns.

What benefits does your association provide to its members?

As a charity, we provide resources, education, and support to individuals and families affected by fragile X syndrome. This includes access to information on the latest research, educational materials, and support groups. We also advocate for increased awareness and funding for fragile X syndrome research.