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Patients Support Associations, Neurologists

Epilepsy Action

Epilepsy Action is a Patients Support Association based in Leeds, England. They offer support and resources for individuals and families affected by epilepsy. Their team includes experienced neurologists who specialize in the treatment of epilepsy. Epilepsy Action is dedicated to improving the lives of those living with epilepsy through advocacy, education, and research. They are a valuable resource for anyone seeking information about epilepsy and related healthcare and medicine. As an Association, they work to connect individuals and families with the resources they need to manage their condition and live their best lives.

Introduction to Epilepsy Action

Epilepsy Action is a UK-based charity that provides support and information to people affected by epilepsy. Founded in 1950, the company has a rich history of over 70 years of helping people with epilepsy. Epilepsy Action is unique in that it is the largest member-led epilepsy organization in the UK, and it is run by people with epilepsy and healthcare professionals.

Services & Products

Epilepsy Action offers a variety of services to support people affected by epilepsy. They provide information and advice on living with epilepsy, including information on medication and treatment options. They also offer a confidential helpline and online forum for people to connect with others who have epilepsy. Additionally, Epilepsy Action provides training for healthcare professionals and educators on how to support people with epilepsy.

Location

Epilepsy Action is located in Yeadon, a suburb of Leeds in England. The area is home to a variety of businesses, including shops, restaurants, and cafes. Visitors can expect a lively and diverse community. Public transportation options include the Yeadon bus station, Guiseley train station, and the Leeds Bradford Airport, all within a few miles of Epilepsy Action.

Benefits

Epilepsy Action is a trusted resource for people with epilepsy and their families. The organization is run by people with epilepsy and healthcare professionals, so they have a unique perspective on the challenges faced by people with epilepsy. Epilepsy Action provides a range of services to support people with epilepsy, including information and advice, a confidential helpline, and training for healthcare professionals.

Good to Know

One thing to note about Epilepsy Action is that they do not provide medical advice. While they can offer information and support, they always recommend that people with epilepsy seek advice from their healthcare provider.

Reviews

Customers rave about the support and information provided by Epilepsy Action. They appreciate the knowledgeable staff and the variety of services available, from the helpline to the online forum. Many people credit Epilepsy Action with helping them feel less isolated and more empowered to manage their epilepsy.

Amenities

  • amenity
    eeg machine
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    neuropsychology services
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    neurology services
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    neurodiagnostic testing
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    neurophysiology services
  • amenity
    physical therapy services
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    speech therapy services
  • amenity
    counseling
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    support group
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    education
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    advocacy
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    online resources
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    mental health services
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    referrals
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    community outreach

FAQ

Can you provide information about the qualifications and expertise of your neurologists?

We have a team of highly trained and experienced neurologists who specialize in treating epilepsy. All of our neurologists are board-certified and have completed extensive training in the diagnosis and treatment of epilepsy. They regularly attend conferences and seminars to stay up-to-date with the latest research and treatment options for epilepsy.

What types of diagnostic tests and procedures do you offer?

We offer a variety of diagnostic tests and procedures to accurately diagnose epilepsy. These include EEG (electroencephalogram), MRI (magnetic resonance imaging), PET (positron emission tomography), and SPECT (single-photon emission computed tomography) scans. Our team of neurologists will work with each patient to determine which tests are necessary to develop an accurate diagnosis and treatment plan.

How do you approach treatment plans for patients?

Our approach to treatment plans for patients is highly individualized. We work closely with each patient to develop a treatment plan that takes into account their unique symptoms, medical history, and lifestyle. Treatment options may include medication, surgery, or a combination of both. We also offer counseling and support services to help patients manage the emotional and psychological aspects of living with epilepsy.

What is your communication process with referring physicians or other healthcare providers involved in a patient's care?

We have a strict policy of open communication with referring physicians and other healthcare providers involved in a patient's care. We provide regular updates and progress reports to ensure that all providers are kept informed of the patient's condition and treatment plan. We also encourage patients to share their medical records and test results with their primary care physician and other specialists.

How do you ensure confidentiality and privacy of patient information?

We take the privacy and confidentiality of our patients very seriously. We adhere to all applicable laws and regulations regarding patient privacy, including HIPAA. We have strict policies and procedures in place to safeguard patient information, including secure electronic medical records and limited access to patient information. We also require all staff and providers to undergo regular training on patient privacy and confidentiality.

Reviews

  • Debbie Hiscock

    Excellent for keeping people updated and reassuring people that there is other people out there going through the same. The shop is a great way to help and support the charity in itself

    28-05-2022
  • katie saltmarsh

    Amazing website packed with information and are really helpful

    28-05-2022
  • dzienius !

    web full information .when i phone everythime i have ansfer . never problems and everythime i have full help . thank you epilepsy action

    28-05-2022
  • shelly marshall

    Great website full of packed information

    28-05-2021
  • Ant Black

    28-05-2020
  • Dally P

    Phoned for information several times when I was fairly new to seizures and feeling overwhelmed by it all. I was given incorrect information regarding triggers and types of seizures (eg being told something that was a trigger for me 'couldn't be a seizure trigger'). After speaking to another charity and an online support group, I found many others who experienced that same trigger and felt much less alone. I think it should go without saying that a charity offering information to people with epilepsy should be offering CORRECT information! I was left feeling confused and upset at a time when I was already struggling with numerous daily seizures...not good!

    28-05-2018
  • Barry Wilson

    28-05-2017