Dystonia UK
Dystonia UK is a non-profit organization based in London, England. They specialize in providing helplines and support for individuals affected by dystonia, a neurological movement disorder. Their focus is on improving the lives of those affected by dystonia through advocacy, education, and research. Dystonia UK works closely with associations and the public sector and society to raise awareness and promote understanding of this condition.
Introduction to Dystonia UK
Dystonia UK is a non-profit organization based in London, England. The company's purpose is to improve the lives of people affected by dystonia, a neurological disorder that causes muscle spasms and contractions. Dystonia UK was founded in 1983 and has since provided support to thousands of individuals and families affected by dystonia. What makes this company unique is their focus on providing helplines, resources, and support groups for individuals with dystonia, as well as funding research to find a cure.Services & products
Dystonia UK offers a variety of services to support individuals with dystonia and their families. Their helplines provide information, advice, and support to anyone affected by dystonia. They also offer support groups and workshops for individuals to connect with others who understand their experiences. Dystonia UK funds research to find a cure and improve treatment options for people with dystonia. Additionally, the company provides resources and information for healthcare professionals and the general public to raise awareness about the disorder.Location
Dystonia UK is located on the 3rd floor of a building on Albert Embankment in London. The area is known for its scenic views of the River Thames and is home to many public sector and society organizations. The closest public transportation options include the Vauxhall Underground station (0.4 miles), the Vauxhall bus station (0.3 miles), and the Vauxhall train station (0.4 miles).Benefits
Dystonia UK is the leading organization in the UK dedicated to improving the lives of individuals with dystonia. Their focus on providing support and resources to those affected by the disorder sets them apart from other organizations in the same industry. Dystonia UK's helplines, support groups, and workshops provide a sense of community for individuals with dystonia and their families, which can be invaluable in coping with the challenges of the disorder.Good to know
Dystonia UK is a registered charity in England and Wales (number 1062595) and Scotland (SC042127). The organization relies on donations from the public to fund their work supporting individuals with dystonia.Reviews
Customers praise Dystonia UK for their compassionate and knowledgeable support, calling their helplines "lifelines" for individuals and families affected by dystonia. The organization's focus on funding research and raising awareness about the disorder is also highly valued by customers.FAQ
Reviews
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Tonie Young
I've had dsytonia for 27 years now. I've had 5 operation an muscles removed an nerves Paralyzed due to dsytonia. Now I've got to more test done as it got worse over time. I have my botox injection every 2 months . But now due to headache and other problems with nerves. This now coursing more problems . So what ever the scientist say it does get worse over time. So just keep up with mediation and injection that u taking
26-05-2022
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Angela Hurd
For years I had this condition and didn't know what it was. After discussing with their help desk, the support and help I received enabled me to get a confirmed diagnosis.
26-05-2016
