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Foundations

CdLS Foundation UK and Ireland

CdLS Foundation UK and Ireland is a foundation based in the United Kingdom that focuses on supporting individuals and families affected by Cornelia de Lange Syndrome. They are dedicated to improving the lives of those with CdLS and raising awareness about the condition. The foundation works closely with the public sector and society to ensure that those affected by CdLS receive the support they need.

Introduction to CdLS Foundation UK and Ireland

CdLS Foundation UK and Ireland is a non-profit organization that was established in 1989. The foundation aims to provide support and guidance to families affected by Cornelia de Lange Syndrome (CdLS), a rare genetic disorder that affects many parts of the body. CdLS Foundation UK and Ireland is the only organization of its kind in the UK and Ireland, making it a unique and invaluable resource for families affected by CdLS.

Services & products

CdLS Foundation UK and Ireland offers a range of services to families affected by CdLS, including information and advice, family support, and advocacy. The foundation also hosts events and conferences to bring families together and provide opportunities to learn and connect with others in the CdLS community. Additionally, the foundation provides funding for research into CdLS, with the ultimate goal of finding a cure for the disorder.

Location

CdLS Foundation UK and Ireland is located in North Stifford, Grays, in the United Kingdom. The area is primarily residential, with a few small businesses scattered throughout. Nearby public transportation options include the Grays train station, approximately 3 miles away, and the Arriva Bus Depot, approximately 2 miles away. The Lakeside Shopping Centre is also nearby, offering a variety of shopping and dining options.

Benefits

Customers should choose CdLS Foundation UK and Ireland because of their unique focus on CdLS. As the only organization of its kind in the UK and Ireland, the foundation is an invaluable resource for families affected by CdLS. The foundation's services and support can make a significant difference in the lives of those affected by the disorder, providing much-needed guidance, information, and community.

Good to know

Customers should be aware that CdLS Foundation UK and Ireland is a non-profit organization, and all proceeds go towards supporting families affected by CdLS. Additionally, while the foundation primarily serves families in the UK and Ireland, they welcome anyone affected by CdLS to reach out for support and information.

Reviews

Customers have praised CdLS Foundation UK and Ireland for their invaluable support and guidance, as well as their dedication to finding a cure for CdLS. Families have found comfort in the foundation's events and conferences, which provide opportunities to connect with others in the CdLS community. Overall, customers appreciate the foundation's unique focus on CdLS and the impact it has had on their lives.

Amenities

  • amenity
    grant
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    donation
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    fundraising
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    community outreach
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    volunteer program
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    impact report
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    social responsibility
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    nonprofit status

FAQ

What is your mission as a foundation in the public sector and society?

Our mission as the CdLS Foundation UK and Ireland is to support individuals and families affected by Cornelia de Lange Syndrome (CdLS) by providing them with information, resources, and a supportive community. We also aim to raise awareness about CdLS and promote research to better understand the syndrome.

How do you allocate your funds and resources to support your mission?

We allocate our funds and resources through a variety of channels, including fundraising events, donations, and grants. These funds and resources are used to provide support and resources for individuals and families affected by CdLS, as well as to raise awareness and promote research. We also work closely with medical professionals and researchers to ensure that our funds are used effectively and efficiently.

What impact have your past initiatives had on the communities you serve?

Our past initiatives have had a significant impact on the CdLS community. We have been able to provide support and resources to individuals and families affected by CdLS, including information and advice, family events, and outreach programs. We have also been able to raise awareness about CdLS and promote research into the syndrome. Our initiatives have helped to improve the lives of those affected by CdLS and their families.

Can you provide examples of successful partnerships or collaborations with other organizations in the public sector?

Yes, we have had several successful partnerships and collaborations with other organizations in the public sector. For example, we have worked with the NHS to provide training and support for medical professionals who care for individuals with CdLS. We have also partnered with other charities to raise awareness about CdLS and promote research into the syndrome. These collaborations have helped us to reach a wider audience and have a greater impact on the CdLS community.

How do you measure and report on the effectiveness of your programs and initiatives?

We measure the effectiveness of our programs and initiatives through a variety of methods, including surveys, feedback from participants, and data analysis. We use this information to continually evaluate and improve our programs and initiatives. We also report on our progress and impact through our annual reports and other communications with our stakeholders. Transparency and accountability are important to us, and we strive to ensure that our efforts are making a positive difference in the lives of those we serve.